NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

New Topic Post Reply
Awaiting diagnosis confirmation Options
SarahB
#1 Posted : Friday, September 06, 2013 8:16:51 PM Quote
Rank: Newbie

Groups: Registered

Joined: 9/5/2013
Posts: 2
I am seronegative, have a high inflammatory marker, stiff and painful joints in fingers, toes, wrists, ankles, knees and elbows, and I'm so fatigued 95% of the time. My doctor got someone else to call me back on two occasions to refuse me anti~inflammatory drugs, and tell me i have reactive arthritis (he hasn't seen me for two months). I'm seeing the doc who first suspected rheumy next Wednesday. Wish me luck lol. Sarah. XConfused
Paul Barrett
#2 Posted : Friday, September 06, 2013 9:17:57 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/24/2013
Posts: 703
Location: Hexham
Welcome to the forum Sarah.

Sounds like you have a lot on your plate with an active set of symptoms and an unsympathetic GP. So what meds are you on? Whatever, going to see the GP who is sympathetic is a great first step. But you also need referral to a rheumatologist. Not only will that give you a specialist diagnosis that your disbelieving GP can't argue with, it will also give you access to the rheumy nursing team - who are the the first line expert defence.

Any way - welcome!
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Rose-B
#3 Posted : Friday, September 06, 2013 11:23:59 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/20/2010
Posts: 1,749
Location: Somerset
Welcome from me Sarah,

This site is useful. I am also sero negative and I keep getting told it very difficult
To treat. I feel for you although I do have a great gp, although he is retiring in December.

My name is rose , 59, from sunny Somerset. Married and 2 children and 1 grand daughter , I was diagnosed 2009 although I suspect I had ra before. I also have fibromyalgia.


rose
SarahB
#4 Posted : Saturday, September 07, 2013 9:19:14 PM Quote
Rank: Newbie

Groups: Registered

Joined: 9/5/2013
Posts: 2
Thank you all. I'm currently only on morphine for pain, which was prescribed for a tail bone injury. My doctor won't even give me steroid tablets, though he's been quick enough to do so for chest infections! Rose, I also have fibro, and an waiting for my doctor to blame everything on that. If he checks my records he'll see I've already been told it's definitely NOT that. Another doc told me it's inflammatory arthritis. She wouldn't even tell me which inflammatory markers were used. XThumbDown
Paul Barrett
#5 Posted : Sunday, September 08, 2013 12:24:37 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/24/2013
Posts: 703
Location: Hexham
If you are on Morphine it sounds as though your doctors have ruled out NSAIDs. Do you perhaps have a history of gastritis, ulcerative colitis, Crohns or some other Irritable bowel disease? If you do, that would account for the non prescribing of NSAIDs, because they will exacerbate the IBD condition.

If you don't have a history of IBD then you should definitely try NSAIDs because as the full name implies (Non Steroidal Anti Inflammatory Drug) they will assist not only in pain relief but also in treating the underlying inflammation. If you can't tolerate them (like me - and BTW I am also sero-negative) then you only have paracetamol and the opiates for pain relief. That's a shame because they are not as good for inflammatory pain. That's not to say they don't work - just that they are not the first choice. Nor are they a primary treatment for RA symptoms. Such treatments are many and varied, which is why you need to see a specialist

But I am surprised that your unsympathetic docs have put you on morphine alone. There's a foursome of pain meds that I use, staring with paracetamol which my doc asks me to take four times a day even if I am not feeling pain, as a preventative, Then there is MST continuus - a slow release form of morphine. Then I have codeine phosphate to use as a back up when the pain get really bad and, at the top of the tree, ora-morphine for when things are really bad. The big problem with codeine and morphine is that you can become addicted. I tried to come off them recently and had cold turkey.

Do get any nausea with the morphine - there are anti emetics that can be prescribed to counter that.

I wonder why your docs are unsympathetic? In most practices you don't have to see your assigned GP. If I were you I would select the most sympathetic and stick with them, because RA is a long term disease and it is helpful to see the same person so they can look at your relative condition compared to previous visits. That's not always easy when you have an acute phase, though. Then you will have to make a judgement call on whether you are prepared to wait for your preferred doc or see someone else sooner.

The most positive thing you can do, bar none, is to get a referral to a Rheumy Consultant (and you have the right to ask for that) so that you can get into the hands of the experts but particularly so you can get access to the rheumy nursing team. The quality of that service varies form place to place but they are generally very good and a fount of knowledge concerning the day-yo-day management of a chronic disease.

Hope that helps
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Louise09
#6 Posted : Sunday, September 08, 2013 1:05:12 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 10/19/2010
Posts: 88
Location: Saddleworth, UK
A warm welcome from me SarahB!

You will find all of us very informative and welcoming. I've had seronegative RA and Fibromyalgia for years since I was 19 (now 41) but was only diagnosed in 2008 after tanting and ranting and stamping my feet (when I could) and I found a brilliant Rheummy who listened and understood me. He said that treating symptoms what what he is about and my goodness what a refreshing change that makes.

I hope you get the right treatment and meds to get you on an even keel!

Good luck and welcome again!

Lxxx
lizziemouse
#7 Posted : Wednesday, September 11, 2013 7:57:26 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 872
Good luck with your appointment Sarah, thinking of you.

Hope you get better support (and a referral) from the other GP. I would avoid the other one who is far too dismissive, and possibly has some significant gaps in knowledge / understanding of RA - you deserve much better treatment x

Let us know how you get on today xx
Users browsing this topic
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.127 seconds.